Patient Advocacy Guides
Navigating medicine as a chronically ill woman requires a specific skill set that nobody teaches you. These guides are that skill set.
Flagship Guide
Coming SoonMaster Patient Advocacy Guide
The complete skill set for navigating medicine as a chronically ill woman — from building your case file to handling dismissal, formal complaints, and sustaining yourself through the long haul. Condition-agnostic. Built from years of navigating the system.
What's included
- ✓Research Like a Pro (AI tools + critical thinking)
- ✓Build Your Case File (documentation system)
- ✓The Appointment Playbook (prep + dismissal scripts)
- ✓Working the System (specialists + referrals)
- ✓When They Say No (PALS, complaints, appeals)
- ✓The Long Haul (advocacy fatigue + pacing)
- ✓Notion: Master Advocacy Dashboard (5 databases)
Condition-Specific Toolkits
UARS Self-Advocacy Toolkit
The exact scripts, templates, and research summaries I used to finally get doctors to listen — after years of being told my sleep study was "normal."
What's included
- ✓Doctor Conversation Script
- ✓Email Templates for Medical Providers
- ✓Sleep Study Red Flags Checklist
- ✓UARS Research Summary for Doctors
- ✓Appointment Prep Checklist
- ✓CPAP vs EPAP Comparison Guide
- ✓Notion: Symptom + Appointment Trackers
CPTSD-UARS Nervous System Toolkit
For when fixing your airway isn't enough. The trauma-UARS loop, nervous system recalibration, and what actually helps when you're still struggling after treatment.
What's included
- ✓Part 1: The CPTSD-UARS Connection
- ✓Part 2: Treatment Decision Framework
- ✓Part 3: Nervous System Healing Practices
- ✓Part 4: Living With It — Day-to-Day and Recovery
- ✓Notion: Recovery Dashboard (4 databases)
PMDD Self-Advocacy Toolkit
Navigate the 20-year diagnosis gap. Scripts, trackers, and research to help you advocate for a PMDD diagnosis and treatment that goes beyond "just try the pill."
What's included
- ✓Doctor Conversation Script
- ✓Research Evidence Summary
- ✓Email Templates for Medical Providers
- ✓Appointment Prep Checklist
- ✓PMDD & Your Nervous System
- ✓PMDD Fatigue Guide
- ✓Notion: Cycle & Symptom Tracker + Appointment Tracker
Endometriosis Advocacy Toolkit
The average diagnosis takes 9+ years. Scripts for dismissive doctors, research on excision vs ablation, a specialist access guide, and a pain tracking system that builds your case.
What's included
- ✓Doctor Conversation Script
- ✓Research Evidence Summary
- ✓Email Templates for Medical Providers
- ✓Appointment Prep Checklist
- ✓Endo & Your Nervous System
- ✓How to Actually Access a Specialist
- ✓Notion: Symptom & Pain Tracker + Appointment Tracker
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