UARS Self-Advocacy Toolkit
Stop being dismissed. Get the diagnosis you need. The exact scripts, templates, and research summaries to use when your sleep study says "normal" but you know something is wrong.
PDFs + Notion templates
Coming soon - currently being refined
Join the waitlist for launch updates. You can start with the free guide in the meantime.
"For years, I was told my fatigue was psychological. My AHI was "normal," so I couldn't possibly have a sleep disorder. It wasn't until I learned to advocate for myself — to ask the right questions and present research — that I finally got the diagnosis that changed my life. This toolkit contains everything I wish I'd had back then."
Josie — UARS patient, double jaw surgery survivor, Rest Reclaimed founder
What's Inside
The Doctor Conversation Script
6 pagesWord-for-word openers, key talking points, and responses to the most common dismissals — including "your AHI is normal" and "it sounds like anxiety."
Email Templates for Medical Providers
3 templatesThree ready-to-send templates: initial inquiry to sleep specialist, requesting sleep study re-analysis with RERA focus, and requesting specialist referral from your GP.
Sleep Study Red Flags Checklist
2 pagesWhat to look for in your results. Explains AHI vs RDI vs RERA — and the classic UARS pattern (high arousal index, normal oxygen, low AHI) that gets missed.
Appointment Prep Checklist
2 pagesWhat to bring, what not to say, how to open the conversation, what a good outcome looks like, and red flags that mean it's time to find a new doctor.
UARS Research Summary for Doctors
6 pagesA professional, evidence-based summary of UARS — pathophysiology, diagnostic criteria, clinical presentation, differential diagnosis, and treatment options. Hand it to providers who haven't heard of UARS.
CPAP, BiPAP, APAP & EPAP Comparison Guide
4 pagesClear breakdown of all four PAP therapy options for UARS — why UARS responds differently than OSA, which devices work best, pressure considerations, and what to ask your provider.
Specialist Finder Guide
3 pagesHow to find a UARS-informed specialist — what to look for, red flags in how providers talk about sleep, questions to ask before booking, and how to evaluate whether a provider is worth pursuing.
Notion: Symptom Tracker + Appointment Tracker
2 templatesTwo Notion database templates — one for tracking daily symptoms over time (builds the evidence base for your case), one for documenting every medical appointment with flags for dismissals and wins.
This Toolkit Is For You If...
- ✓Your sleep study came back "normal" but you're exhausted
- ✓You've been told it's anxiety, depression, or stress
- ✓You know something is physically wrong but can't prove it
- ✓You're tired of being dismissed and don't know what to say in appointments
- ✓You want to find a UARS-informed specialist
- ✓You've been newly diagnosed and need to understand your treatment options
Questions
Is this available yet?
Not yet. The toolkit is still being refined before it goes live. Join the waitlist for launch updates and start with the free guide in the meantime.
Do I need Notion?
The Notion templates are optional. The core toolkit is entirely PDF-based and printable. Notion is free to use if you want the digital trackers.
Is this medical advice?
No — this is a patient advocacy resource based on personal experience and research. It helps you communicate with doctors and understand your options, but it's not a substitute for professional medical advice.
I'm in the US / Australia — will this still work?
Yes. The scripts and templates are adaptable to any healthcare system. The research summary is internationally relevant.
This Toolkit Is Coming Soon
Join the WaitlistJoin the waitlist for launch updates. You can start with The Map They Never Gave You in the meantime.
Other Toolkits Coming Soon
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